When you use our services, you’re trusting us with your information. We work hard to protect your personal data, and we support your rights to control how we use it.
This privacy notice tells you how we collect and process your personal data on our website ldnresearchtrust.org and related sites, including LDN Research Trust conference sites and ldnapp.org. The policy covers information you give us when you:
You must be 14 or older to give us your data in any form.
Why we collect your data
We collect your information so we can:
How we collect your data
We collect and process data you give us, data we collect as you use our services, and data that is from third parties and public sources.
1. Data you provide to us
If you choose to use the myLDN health tracker you may choose to give us sensitive data, which includes information about health conditions, your use of medications, past and current health status and other data you choose to reveal including pain, disability, mood, fatigue, sleep, diet, height, weight, physical and social activities, etc.
We require your explicit consent to collect your sensitive data. When you register to use the application you will be required to confirm your consent for us to process your sensitive data.
2. Data we collect as you use our services
When you visit our website, our systems automatically collect:
3. Data from third parties that is a by-product of using our services
We may receive technical data from Google or other analytics providers. We may also receive contact, financial and transaction data from payment services such as PayPal and delivery services.
4. Data from public sources
We may collect your name, contact information, profile and posts from Internet searches and social media including LinkedIn, FaceBook and Twitter. We may also collect your name, contact information, professional background and public posts from sites related to our mission such as PubMed.gov, based in the United States, and HealthUnlocked.com, based in the United Kingdom.
When we use your data
We only use your information when there is a lawful basis. The lawful basis for using your personal data is one or more of the following:
Consent is the lawful basis for processing your personal data when:
You can withdraw consent at any time. To unsubscribe from newsletters and marketing communications use the unsubscribe link on any email from us. You can delete your account from myLDN in the app settings. Doing so will remove all personally identifiable data and retain anonymized data for research. You can email us at email@example.com to remove consent from any of the other uses listed above.
You will receive marketing communications from us if you requested information from us or made a purchase and you have not opted out of receiving marketing communications.
We will get your express opt-in consent before we share your personal data with any third party for their marketing purposes.
Where you opt out of receiving our marketing communications, this does not affect the personal data you provided to us as a result of:
Fulfilling a contract is the lawful basis for processing your information when:
If we are required to collect personal data by under the terms of the contract between us or by law and you don't provide us the data, we may not be able to perform the contract (for example, to deliver goods or services to you). We may have to cancel a product or service you have ordered but if we do, we will notify you at the time.
Legitimate interests is the lawful basis for processing in specific circumstances. We use legitimate interests to process your information:
Some processing has more than one lawful ground. Please contact us at firstname.lastname@example.org if you need details where more than one ground is stated for a given purpose.
Anonymized aggregated data
We may anonymize and aggregate data for analysis or research. Anonymized data does not reveal your identity and is not personal data. For instance, we may calculate the percentage of website users that use a specific feature. If we link the aggregated data with data that can identify you, then it is treated as personal data.
Change in purpose for data use
We will only use your personal data for the purposes for which we collected it, unless we reasonably consider that we need to use it for another reason and that reason is compatible with the original purpose. If we need to use your personal data for a purpose unrelated to the purpose for which we collected the data, we will notify you and we will explain the legal ground of processing.
We may process your personal data without your knowledge or consent where this is required or permitted by law.
Who receives your data
Our service providers
We use services provided by other companies to run our business. These services may include fulfilling orders, processing credit card payments, delivering packages, providing customer service and marketing assistance, performing business and sales analysis, supporting our website functionality, and supporting contests, sweepstakes, surveys and other features offered through our website. Our third-party service providers may have access to personal information needed to perform their functions but are not permitted to share or use such information for any other purposes. They are required to respect the security of your personal data and treat it lawfully. We only allow third parties to process your information for specified purposes and only according to our instructions.
Our third-party service providers, location of data storage and purpose
Other data recipients
We require all data recipients to respect the security of your personal data and to treat it in accordance with the law. They may process your personal data for only for the specified purposes and in accordance with our instructions.
How we protect your data
Countries outside of the European Economic Area (EEA) do not always offer the same levels of protection to your personal data, so European law has prohibited transfers of personal data outside of the EEA unless the transfer meets certain criteria.
Many of our third parties service providers may transfer and process your data outside the EEA. We do our best to ensure your data stays secure by requiring at least one of the following safeguards:
If none of the safeguards are available, we will ask you for explicit consent to allow the transfer. You will have the right to withdraw this consent at any time.
We have put in place appropriate security measures to prevent your personal data from being accidentally lost, used or accessed in an unauthorised way, altered or disclosed. In addition, we limit access to your personal data to those employees, volunteers, contractors and other third parties who have a business need to know such data. They will only process your personal data on our instructions and they are subject to a duty of confidentiality.
We have procedures for responding to a suspected personal data breach and will notify you and any applicable regulator of a breach where we are legally required to do so.
How long we keep your data
We will only retain your personal data for as long as necessary to fulfil the purposes we collected it for, including for the purposes of satisfying any legal, accounting, or reporting requirements.
To determine the appropriate retention period for personal data, we consider the amount, nature, and sensitivity of the personal data, the potential risk of harm from unauthorised use or disclosure of your personal data, the purposes for which we process your personal data and whether we can achieve those purposes through other means, and the applicable legal requirements.
By law we have to keep basic information about our customers (including contact, identity, financial and transaction data) for six years after they cease being customers for tax purposes.
In some circumstances we may anonymise your personal data (so that it can no longer be associated with you) for research or statistical purposes. If we do so, we may use this information indefinitely without further notice to you.
Controlling your data
Your legal rights
Under certain circumstances, you have the right to make requests regarding the information we collect and how it's used. Under data protection laws you have the right to:
You can see more about these rights at:
Exercising your rights
1. Send us your request in writing
If you wish to exercise any of the rights set out above, please email us at email@example.com with your specific request, or send by post to LDN Research Trust, PO Box 1083, Buxton, Norwich NR10 5WY.
2. Verify your identity
Before we can provide access to or take action on your data we must verify your identity. We will request specific information from you to help us confirm your identity. This is a security measure to ensure that personal data is not disclosed to any person who has no right to receive it.
3. Provide additional information
We may contact you to ask for more information about your request to speed up our response.
What to expect
You will not have to pay a fee to access your personal data (or to exercise any of the other rights). However, we may charge a reasonable fee if your request is clearly unfounded, repetitive or excessive. Alternatively, we may refuse to comply with your request in these circumstances.
We try to respond to all legitimate requests within one month. Occasionally it may take us longer than a month if your request is particularly complex or you have made a number of requests. In this case, we will notify you and keep you updated.
It is very important that your information is accurate. Please let us know at any time if your personal information changes. If you receive data from us, please correct any errors so we can keep our systems up to date.
Some requests cannot be accommodated. If this happens, we will provide a reason.
You have the right to complain to the Information Commissioner's Office (ICO), the UK supervisory authority for data protection issues (www.ico.org.uk). We should be grateful if you would contact us first if you do have a complaint so that we can try to resolve it for you.
Other ways to control your data
Data you voluntarily disclose to the public
We may provide areas on our websites where you can post information about yourself and communicate with others; upload content (e.g. pictures, videos, audio files, etc.); and post comments or reviews of content found on the website. Such postings are governed by our Terms and Conditions. When you voluntarily disclose personal data, including sensitive data, on publicly-viewable web pages, that information will be publicly available and can be viewed, collected and used by others. We cannot control what viewers may do with the information you post, so we encourage you to exercise caution with respect to posting your personal information.
We have appointed a Data Protection Officer who is in charge of privacy related matters for us. If you have any questions about this privacy notice, please contact our Data Protection Officer.
Full name of legal entity: LDN Research Trust
Data Protection Officer: Laurie Phillips
Email address: firstname.lastname@example.org
Postal address: LDN Research Trust - PO Box 1083, Buxton, Norwich NR10 5WY
If you are not happy with any aspect of how we collect and use your data, you have the right to complain to the Information Commissioner’s Office (ICO), the UK supervisory authority for data protection issues (www.ico.org.uk). We should be grateful if you would contact us first if you do have a complaint so that we can try to resolve it for you.